Patient Resources

Websites and Parent Communities

  1. Facebook – Dr. Ramen Chmait’s Fetal Treatment Group https://www.facebook.com/groups/39024153027
  2. Facebook – USC Fetal Surgery Pilot Group For Spina Bifida https://www.facebook.com/groups/877890259270686
  3. Los Angeles Fetal Surgery Reunion Galleries Reunion Galleries – Los Angeles Fetal Surgery
  4. Fetal Health Foundation https://www.fetalhealthfoundation.org/
  5. TTTS Foundation https://www.tttsfoundation.org/
  6. Maternal Alloimmunization Foundation Home | Maternal Alloimmunization Foundation
  7. Hand to Hold – Support for NICU Parents | Hand to Hold | Free Emotional Support
  8. Dear NICU Mama – Letters of Hope – Dear NICU Mama | Providing Support For NICU Moms
  9. Spina Bifida Association – Expectant Families – Expectant Families | Spina Bifida Support & Resources
  10. Dr. Ivy Love Margulies, Grief, Trauma, Loss, & Healing Expert  www.drivylove.com
  11. MISS  www.missfoundation.org
  12. MEND  www.mend.org
  13. The Compassionate Friends  www.compassionatefriends.org
  14. March of Dimes, Loss & Grief,  http://www.marchofdimes.com/complications/complications-and-loss.aspx
  15. Miscarriage, Stillborn, & Infant Loss Support
    Group http://community.babycenter.com/groups/a15155/miscarriage_stillbirth_infant_loss_support
  16. Share for Parents, http://www.nationalshare.org/
  17. Glow In the Woods http://www.glowinthewoods.com/, board/blog for bereaved parents
  18. Baby Angel Pics http://www.babyangelpics.com, free photo retouching for babies who are stillborn
    or die shortly after birth.

Informational Books

  1. “Right on Time – Dear NICU Mama”, by Ashley Ham, Illustrated by Troy Becker
  2. “The Wonderful Things You Will Be”, by Emily Winfield Martin
  3. “I Wish You More”, by Amy Krouse Rosenthal, Illustrated by Tom Lichtenheld
  4. “When Hello Means Goodbye: A Guide for Parents Whose Child Dies Before Birth, at Birth or Shortly
    After Birth”, by Pat Schwiebert, RN and Paul Kirk, MD
  5. “Empty Arms:  Coping with Miscarriage, Stillbirth , and Infant Death”, by Sherokee Ilse
  6. “Empty Cradle, Broken Heart: Surviving the Death of Your Baby” by Deborah L. Davis, Ph.D.
  7. “When the Bough Breaks: Forever After the Death of a Son or Daughter” by Judith R.
    Bernstein, Ph.D.
  8. “Beyond Tears:  Living After Losing a Child” by Mitchell, Volpe, Long, Levine, Kasden, Goldstein,
    Eisenberg, Colletti, Cohen and Barkin
  9. “Navigating The Unknown: An Immediate Guide When Experiencing the Loss of Your Baby” by Amie Lands

Grief Journeys

  1. “Dear Cheyenne:  A Journey of Grief” by Joanne Cacciatore
  2. “Life Touches Life:  A Mother’s Story of Stillbirth and Healing” by Lorraine Ash
  3. “An Exact Replica of a Figment of My Imaginaton: A Memoir” by
    Elizabeth McCracken
  4. “From Grief to Glory” by James Bruce III
  5. “Trusting God Even When Life Hurts” by Jerry Bridges

Next Stages

  1. “Pregnancy After A Loss: A Guide to Pregnancy after a Miscarriage, Stillbirth, or Infant Death” by
    Carol Cirulli Lanham
  2. “Journeys: Stories of Pregnancy After Loss” by Amy L. Abbey

MATERNAL GRIEF RESOURCES

  1. Postpartum Support International