Patient Resources

Websites

  1. Facebook – Dr. Ramen Chmait’s Fetal Treatment Group https://www.facebook.com/groups/39024153027
  2. Facebook – USC Fetal Surgery Pilot Group For Spina Bifida https://www.facebook.com/groups/877890259270686
  3. Fetal Health Foundation https://www.fetalhealthfoundation.org/
  4. TTTS Foundation https://www.tttsfoundation.org/
  5. Dr. Ivy Love Margulies, Grief, Trauma, Loss, &
    Healing Expert  www.drivylove.com
  6. MISS  www.missfoundation.org
  7. MEND  www.mend.org
  8. The Compassionate Friends  www.compassionatefriends.org
  9. March of Dimes, Loss & Grief,  http://www.marchofdimes.com/complications/complications-and-loss.aspx
  10. Miscarriage, Stillborn, & Infant Loss Support
    Group http://community.babycenter.com/groups/a15155/miscarriage_stillbirth_infant_loss_support
  11. Share for Parents, http://www.nationalshare.org/
  12. Glow In the Woods http://www.glowinthewoods.com/, board/blog for bereaved parents
  13. Baby Angel Pics http://www.babyangelpics.com, free photo retouching for babies who are stillborn
    or die shortly after birth.

Informational Books

  1.  “When Hello Means Goodbye:
    A Guide for Parents Whose Child Dies Before Birth, at Birth or Shortly
    After Birth”, by Pat Schwiebert, RN and Paul Kirk, MD
  2. “Empty Arms:  Coping with
    Miscarriage, Stillbirth , and Infant Death”, by Sherokee Ilse
  3. “Empty Cradle, Broken Heart: 
    Surviving the Death of Your Baby” by Deborah L. Davis, Ph.D.
  4. “When the Bough Breaks: 
    Forever After the Death of a Son or Daughter” by, Judith R.
    Bernstein, Ph.D.
  5. “Beyond Tears:  Living After
    Losing a Child” by Mitchell, Volpe, Long, Levine, Kasden, Goldstein,
    Eisenberg, Colletti, Cohen and Barkin
  6. “Navigating The Unknown: An Immediate Guide When Experiencing the
    Loss of Your Baby” by Amie Lands

Grief Journeys

  1. “Dear Cheyenne:  A Journey
    of Grief” by Joanne Cacciatore
  2. “Life Touches Life:  A
    Mother’s Story of Stillbirth and Healing” by Lorraine Ash
  3. “An Exact Replica of a Figment of My Imaginaton: A Memoir” by
    Elizabeth McCracken
  4. “From Grief to Glory” by James Bruce III
  5. “Trusting God Even When Life Hurts” by Jerry Bridges

Next Stages

  1. “Pregnancy After A Loss:  A
    Guide to Pregnancy after a Miscarriage, Stillbirth, or Infant Death” by
    Carol Cirulli Lanham
  2. “Journeys:  Stories of
    Pregnancy After Loss” by Amy L. Abbey

MATERNAL GRIEF RESOURCES

  1. Postpartum Support International